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Live life Foundation > Who We Are

Who We Are

LIVE LIFE FOUNDATION

Who we are

Live Life Foundation is a registered charity driven by one powerful belief: children diagnosed with neurological disorders such as spinal muscular atrophy (SMA), Duchenne muscular dystrophy (DMD), and other neurogenetic conditions deserve every chance to live a full and vibrant life.

Since 2014, we’ve partnered with The Royal Children’s Hospital to drive a powerful shift in what’s possible for these children. By bringing breakthrough treatments, such as advanced gene therapies to the forefront, we’re changing the story for children and families across Australia.

Thanks to our generous donors, Australia’s first gene therapy ward is on the way, giving children faster access to the care and hope they need, right when it matters most. 

Live Life Foundation. Every Child. Every Chance.

Our vision

A world where every child with a genetic condition is defined by possibility, not diagnosis.

Our mission

To raise $4.5M for Australia’s first gene therapy ward at the Royal Children’s Hospital.

Live Life Foundation

Our core values

Equity

We champion medical access for every child with a rare disorder - regardless of their background, diagnosis, or financial situation.

Courage

We support pushing boundaries in medicine, fundraising, and what’s possible for children’s health.

Connection

We show up build lasting, personal relationships with families, donors, and supporters.

Integrity

We’re transparent, accountable, and outcome-driven - because trust is earned through action.

Hope

We spark belief in a different future, where children are defined by potential, not diagnosis, nor prognosis.

Live Life Foundation

What makes Us different?

We move fast
As a registered charity with no red tape, we act quickly and stay focused. Every dollar goes straight to work, starting with Australia’s first dedicated gene therapy ward for children.
We’re deeply connected
In partnership with The Royal Children’s Hospital, we help bring world-first treatments into real care. Together, we’re changing what’s possible for children with rare neurological conditions.
We’re driven by purpose, not process
Every decision is shaped by urgency, compassion and care. We do this for families facing the hardest diagnoses, and for the children who deserve the chance to live life fully.
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